Update 12/14/04 from Gina

[ja3kfd 34]

Dear Family and Friends,

California is beautiful, but this has been the hardest month we have had yet. I guess I have kinda sugar coated what has really been going on.

Jimboy had a severe reaction. We are still trying to figure it out. I did not want to worry anyone, so I kept it to myself. This was probably the most scared I have been throughout. I guess being alone in CA made it more difficult. He was having serious seizures, and we could not get them under control. He was given Topamax (anti-seizure) which has several severe side effects, which I found out later. He lost his ability to speak, swallow and some motor issues. It has been very scary to get through. The question was whether he had a stroke - no. When he had a severe reaction as it got into his system (takes 2 weeks to fully be at a therapeutic level) we quickly stopped. Now two weeks to get it out, but the side effects already had taken place and no one could tell me if they would be permanent. Every day was harder and harder. So Friday we came home and he still could not speak or swallow water so basically I was force feeding him water. My parents arrived on Saturday with Emma, and I could tell by there faces that his condition really worried and scared them. He was in really rough shape. Then the rash on his face started to reappear, and again, he was having a reaction - to the couches. They are rentals, so God knows what they treat them with. We had them change them the last time we thought he reacted to them. So needless to say, this poor child has been run through the mill. I just want to cry for him. He could understand everything I was telling him, but could not speak back. He has a very long road ahead with therapy. He continues to smile through it all, which amazes me - but then again when hasn't he amazed me. He is a true bright light. Even the nurses at the hospital (as usual) could not get over how much strength and love he has in his eyes. He doesn't even need to speak to them and they see it.

So I apologize that I have not explained this all, but I have been a little overwhelmed and scared. I am happy to report that tonight there is much more speech and he is able to swallow better. I am just taking it one step at a time (at least trying to) and helping get back on track. As of today, we have had eight treatments with about 27 more to go.

Casey, Victoria, Amanda, Jaime and big Jim are all flying out on Friday and me, my parents, jimboy and emma will be meeting them in Anaheim at Disney. I can't wait to see my kids and Jim. They will fly home on the 22nd in time to go get Jessica for Christmas break. I am so sad not to see her, but I will in time.

Words cannot even say a big enough thank you to Theresa Reda, The Somers Schools Staff, The Somers Italian American Club, Friends of Karen and the countless numbers of people and donations that has made this trip for my children possible. We live in a very special town and area, and I am so proud and honored to be a part of it.

I say all the time how thankful I am to have so many loving, caring and special people in my life. You are all the best. We could not do this without you. Jimboy is very special to have you all praying for him. He is a special young boy, and we love you all for your support. The pain that we are all feeling is unspeakable. I know you all wish you could take it away, I know you cannot but just having you there has made it all bearable. Thank you, thank God for you. I cannot even express my thanks enough. I am trying desperately to keep up with the thanks.

Please, tell someone you love them today, smile at a stranger and thank God for your every moment with friends, family, health and the greatest of all Love. Know that I am praying for each and every one of you, as I know you continue to pray for Jimmyboy. My little angel is going to get through this.

I took this picture in the hospital when he was feeling better on Friday. Isn't he beautiful. What a little angel. I love him so very much, I miss my girls and look forward to a day when calmness is my routine. Until then, please keep praying, loving and enjoying your wonderful life with family and friends. I love you and kiss your kids for me. God Bless You and Your Family Today and Always, Love Gina & Jimboy

[Guest WolfEMT]

Thoughts and prayers are with you, Jimmy Boy, and your family for this Holiday Season...